Big Sibling is Watching

I was sitting in a hotel in Madison, Wisconsin, and I just glanced at Facebook. Right smack at the top of my feed there was a photo of a tee shirt that said, “I may live in Wisconsin, but my story began in Massachusetts.” That was incredibly creepy. Although they got part of it wrong (I was only visiting Wisconsin), it didn’t take long for social media to figure out where I was and where I grew up (and try to sell me a tee shirt about it).

Kind of reminds me of all my health care information being in the cloud, or how the electronic health record follows me everywhere. I realize it’s convenient for some, but it still creeps me out when I go to a provider and they know everything about me before I even say a word.

Maybe it’s time to unplug. Go analog. Head for the mountains. Oh yea, I already live in the mountains. But you knew that.

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Who can do it all?

checklist (2)I used to be incredibly efficient. I can still get a lot done, but I’m noticing that I’m not as efficient as I used to be. Not sure if I’m slowing down to focus on different things than I used to (for instance, I have my kids at home for less than two years so I’m definitely focusing on them and not cleaning the house), or what.

The other day I was in a waiting room and saw a magazine cover that had this list on it:

  • sleep better
  • cook quicker
  • eat healthier
  • lose weight
  • clean faster
  • stress less
  • have more fun

In the past a list like that would have piqued my attention. I would have leafed through that magazine, found the article and read it with excitement. How? How?

This time I looked at the list, then I looked at it again, and I thought, “Right.” When something seems too good to be true, it usually is. This response is not because I’ve lost hope or have suddenly become down or skeptical. I just understand at this point in life that we can’t do it all. It’s ok to relax a little. Take more time to get things done (and still do a good job), and focus on what really matters.

In order to have fun I may not be able to focus on cleaning or losing weight. In order to eat healthier it may require taking more time to prepare foods and cook. Putting that much pressure on ourselves is not likely to lead to less stress and better sleep.

I appreciate the sentiment of that magazine writer, and I am not going to pursue that article or that list. I’m going to stick with focusing on what matters in my life and doing the best I can with the rest of it.

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Stop the Commentary

The following can be considered a public service announcement.

People who work in health care: stop the commentary.

Recently I’ve heard comments about co-pays “This is a really great co-pay!” (You don’t know if that was my last 25 dollars.)

About needles “It’s a 20-gauge needle, which is really small” (Every day I use a 31-gauge needle, which is much smaller. I know what a really small needle is and your definition of really small might be different from mine.)

About diagnostic imaging machines “This will just be a little pressure. It won’t hurt.” (Let me define my own pain/pressure.)

Instead of deciding for the person…what’s cheap, what’s small, what doesn’t hurt…just provide neutral and factual information. Let the person decide. If there’s something you can do about it, then ask. If there is nothing you can do about it, just offer support.

We all appreciate when you care and when you give accurate and unbiased information.

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The Experiment

267611Managing diabetes is like conducting an experiment. Every day. Not sure how scientific these experiments are, though.

Diabetes has been compared to a game, a challenge, an experiment. What else? What do you consider it in order to keep a sense of humor, try new things, and stay sane?

In November I started a new long-acting insulin. Here I am three months later and it’s still an ongoing experiment. It really does take patience and a sense of humor to manage diabetes. I’ve written before about how helpful it is to be as consistent as possible in order to achieve consistent blood glucose levels. Well, life is not consistent, so it’s no wonder many people with diabetes either put up with less than ideal glucose levels, or even give up from time to time!

Continuous glucose monitoring and switching to a new insulin have opened my eyes to the many factors that make diabetes hard to manage. Work, kids, hormonal changes (whether that’s puberty or stress or menopause), life challenges, relationships, travel, and so many other variables play into how we manage (or don’t manage) our diabetes. Just when we think we have it down, one little change can throw the whole thing off. We say it’s “all about balance,” yet is balance even achievable in life?

I realize this type of post is frustrating to read because there are no answers. There are no simple tricks. There’s only persistence, perseverance, determination, humor, and hope. Get up each morning and start over. Without praise or recognition. Just experiment.

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Sorry it’s been a while

Not blogging for a month is a great reminder that some things in life can be put on hold. Diabetes is not one of them. So take advantage of those things you can start and stop at will, I say!

A lot has happened in the past month. Some things worth writing about, most not. I have been trying to adjust to Tresiba (long-acting insulin). The usual trials and errors. Jury is still out. Oh, and while I’m at that I’ve been trying to adjust to insulin pen life. I’ve never been a fan. Still not completely, but I’m dealing.

And if you care, shoveling is a really really good way to bring (and keep) glucose levels down. There’s been a lot of that going on this past month as well.

My friend Riva wrote a blog post where she interviewed me about language and diabetes. Check it out here.

I also launched my podcast (let’s call it a “soft launch”), so there’s that. I’ll tell you more about it another time.

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Do you like grocery shopping?

groceriesI rate grocery shopping about the same as going to the post office. Both are very (very) low on my list of things I enjoy doing. Actually they are on a different list.

I recently learned that my brother does not like grocery shopping and neither does my sister. Maybe it’s genetic?

Another thing about grocery shopping is that if I don’t have a list I’m in trouble. I’ll get things I don’t need and forget the ones I do need. Then I have to go back!!

What in the world does this have to do with anything? No idea. Just thought I’d bond with the grocery shopping haters of the world. Although if I really think about it, managing diabetes is limited by food. We have to eat and food messes with the old blood glucose. And with grocery shopping – since we have to eat, we have to somehow get the food.

Don’t even get me started on carrying groceries inside and putting them away. I would rather dust.

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Healthy choices in traditional cultural diets

CRS Q/A Question: Hopefully you have a unique perspective. Given the rapidly changing demographic profile of Texas specifically, and the US in general (namely significantly increasing Hispanic population), how do you approach the importance of the lifestyle modification (specifically dietary) of the high fat, high simple carbohydrate, traditional cultural diet?

Because I am not a dietitian, I asked Evelyn Arteche, RD, to answer this one! Evelyn is based in New Jersey, where she works with people who have diabetes. She is also a student in the online Master of Science in Diabetes Education and Management at Teachers College Columbia University!

Here is Evelyn’s response:

The best way I can summarize how to approach this question is with a quote by Theodore Roosevelt – “people don’t care how much you know until they know how much you care” (retrieved from here).

In order to engage the Hispanic population and help them find motivation to take better care of themselves through lifestyle changes, we must absolutely tap into their emotional center and we must be genuinely caring and authentic. Hispanic people value warm and personal relationships with their health care providers. Like Theodore Roosevelt said, they want to know that you care more than they want to know what you know.

Culture is key for Hispanic people; basing your recommendations around their culture is essential. For example, in Puerto Rico, dancing is a very significant way that a variety of occasions, such as birthdays and Christmas Eve, are celebrated, and therefore recommending dance or Zumba as a form of exercise may actually increase their excitement to be more active.

Family is also highly valued in this population, so suggesting healthy lifestyle changes that not only benefit them, but also their family members, may help to motivate the Hispanic individual, especially if they include their family in the changes they make.

Heritage is important to Hispanics and traditions are usually passed down from one generation to the next. Let them know that they do not have to lose their heritage, such as traditional foods they love and grew up with. Instead they can make simple changes in how they prepare foods, or watch their portion sizes. Using the plate method, where half their plate contains non-starchy vegetables, can encourage healthy eating habits. A 3-4 ounce serving of lean protein, preferably not fried, or plant-based protein, and the remaining ¼ of their plate dedicated to starch, preferably whole grain, make a well-balanced meal.

The point is to present it in a way that lets them know that, yes, they can still enjoy the foods they love by preparing them in a healthful way, watching their portion sizes, and including lots of vegetables. This way the starchy foods do not dominate the meal. With a little care, they can adopt a healthy lifestyle and ultimately improve their health.

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Understanding the Benefits of Exercise can Benefit Health

2013-blog-team-novo-nordisk-cycling-1Some Australian researchers have identified understanding the benefits of exercise as a motivator for actually engaging in physical activity or exercise. In the past I’ve written about the importance of simply asking people if they exercise – in other words, start the conversation. Now it appears that teaching people about the benefits of exercise is also beneficial. Maybe more so than focusing on the risks of not exercising. Here are some of the benefits:

  • better sleep
  • improved mental health
  • improved cardiovascular health
  • stronger and healthier joints
  • decreased arthritic pain
  • stronger bones
  • stronger muscles
  • healthier skin
  • clearer thinking (healthier brain)
  • improved memory
  • improved mood
  • increased energy level
  • lower blood glucose
  • lower blood pressure
  • increased HDL cholesterol
  • reduced risk for type 2 diabetes and colon cancer
  • improved overall health and well-being
  • increased life expectancy

If you have read this post, you now have at least a basic understanding of the benefits of exercise. The most effective way to reap the benefits of exercise is to incorporate it into your daily routine and make it a habit. Time to stop reading and go do something active!

Photo credits: Team Novo Nordisk – competitive bike racers with type 1 diabetes taking exercise to a new level!!

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Artificial Intelligence and Health Care Communication

AI imageWhen I saw a tagline about artificial intelligence (AI) improving patient-provider communication I read on with great interest. What? How?

This article claims AI will provide better ways to communicate between providers and patients. I take from this that AI has the potential for more accurate communication as opposed to more effective communication. In fact, I’ll go a step further and clarify that AI could improve correspondence, while it still takes human interaction to achieve effective communication.

While AI can make sure people get the correct lab results and schedule their follow up appointments on time, it cannot replace human interaction.

All the work we’ve done on language and messaging in diabetes is about how we talk to (and about) people. It includes tone and body language. Let’s make sure to continue the language movement and work toward person-first, strengths-based, empowering communication, so that AI incorporates these principles of effective communication rather than simply perpetuating the problems we’ve had in diabetes all along.

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23 Problems

problem-free-clipart-1I was inspired by a recent Seth Godin post about Hilbert’s list of 23 problems, compiled back in 1900. I decided to write my own list of 23 problems…in diabetes. Rather than calling them problems, I would say these are challenges we need to work on.

Here they are in no particular order:

  1. faster acting bolus insulin
  2. “smart” insulin
  3. acceptance (approaches to diabetes care)
  4. acceptance (language of diabetes)
  5. informed public
  6. faster/more accurate diagnosis
  7. health insurance
  8. health information (documentation and correspondence)
  9. access to diabetes care and supplies
  10. diabetes education referrals
  11. access to diabetes education
  12. a cure for lipoatrophy
  13. access to healthier food options
  14. lower prices on produce
  15. reintroduce the “exchange system”
  16. incorporate physical activity daily
  17. teach/understand the basics
  18. eradicate hypoglycemia
  19. figure out who gets/doesn’t get complications and build on that
  20. address mental health and diabetes
  21. focus on the person, not the data
  22. shared decision making leading to empowerment
  23. change the focus to living well

I look forward to taking a closer look at each of these throughout 2019.

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