Get a flu shot

I waited to write this post until I got mine, which I did almost a week ago. Now it’s your turn.

Protect yourself from the flu. Protect others. And know what the flu (influenza) is: a viral infection. It cannot be treated with antibiotics. It presents with upper respiratory symptoms and fever. People with diabetes have a higher rate of hospitalization and death from the flu. Small children and elderly people are at risk. Kids living in college dorms are at risk.

Here’s the really good news: they’ve perfected this vaccination so the needles are smaller and it hurts less. I’m not making this up. I got my flu shot last week and I hardly felt it during or after.

Protect yourself and others. Thank you.

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Is it sustainable?

The last time I posted I had just dropped my son at college. Now he’s been there almost two months and I’ve already visited him once. I think about this blog much more often than I actually sit down and contribute something to it. Makes me wonder…is it sustainable?

Recently I’ve heard about at least two people who have shut down their diabetes blogs. It was quite earth-shattering news because these were very prominent bloggers. Did they burn out? Did they turn their focus elsewhere? Did their priorities change?

When it comes to managing diabetes and lowering our risk for problems down the road, we don’t really have a choice but to keep doing it. Keep monitoring glucose, keep taking medications, keep paying attention to food choices, keep being active. Those are the activities that lead to a better chance for better outcomes. They are not a guarantee, but they are our best bet. What we can do, though, is make sustainable choices.

A man who was diagnosed with type 2 diabetes told me he had decided to cut out carbs to lose weight. He also started going to a gym several times a week. He was excited because he was losing weight. My question for him was “is this sustainable?” He said yes, it was.

My goal with food and exercise is to choose a lifestyle that’s sustainable for me. If I make drastic changes, they don’t stick long term. I know I can’t live without fruit, so I would never give up carbs. That wouldn’t be sustainable. I also know that going to a strength training class three times a week leads me to burnout and injury, so I go twice. That’s sustainable.

Sustainable choices are probably just as important as the choices themselves.

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How college drop-off raised my A1C

I dropped my son at college this past Friday. I had been anticipating this for a while (approximately 18+ years). In fact, the day after we brought him home from the hospital I cried for hours. When I called a friend she asked, “what’s wrong?” and I sobbed, “he’s going to go to college.” She said, “in 18 years!” and I responded, “I know!” When everyone says it goes fast, plan on faster.

Anyway, I spent last week eating my feelings, as the teenagers say, which didn’t do my blood glucose any favors. Forget time in range! I’m happy to say that the actual drop off day went well. We shopped at Target, took loads up to his dorm room, got his bed made and clothes put away. We went for a drive and killed some time, had lunch, then I left him forever. Or at least for several weeks.

I made a promise at orientation (silently, in my head, when the dean of students asked all of the parents) not to cry in front of him. I didn’t even cry in the car! I did a lot of distraction techniques – talked and texted with friends, went to dinner, went for walks. Then I got on the plane to head home and that was the hard part. That didn’t help my blood glucose either – you know, the whole stress-raises-blood-glucose thing.

Today is better. He’s good. I’m good. I’m eating vegetables again. Unfortunately, my endo visit is on Wednesday. I’m not looking forward to the CGM download. Roller coaster ride will be a very appropriate name on many levels. And we’ll all move through this just like the other phases of life/parenting (teething, potty training, and teaching him how to drive being in the top five of least enjoyable moments). Carry on.

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Hypoglycemia needs and opportunities

Hypoglycemia (aka “low blood glucose”) is dangerous, annoying, frustrating, time consuming. It causes us to lose productivity, forces us to stop exercising or working, can affect relationships, and even leads some people to run their blood glucose levels higher in order to avoid it.

While we desperately need to remove hypoglycemia from the diabetes equation all together, that’s not going to happen in the foreseeable future.

In the meantime, many groups and individuals are working hard to learn more about hypoglycemia, develop drugs that cause less of it, teach people about it, and come up with better ways to categorize and talk about it.

Michelle Litchman and I have developed a survey to learn more about how people define hypoglycemia, when and how they treat it, what symptoms they experience (if any), and what they call it. We believe improved understanding of this information will help diabetes professionals do a better job of teaching people about hypoglycemia and possibly even lowering people’s risk of hypoglycemia as a result.

If you experience hypoglycemia, please take the survey at this link. If you know others who have type 1 or type 2 diabetes and experience hypoglycemia, please share the link below with them and ask them to participate in our study. The survey takes at most ten minutes to complete and participants’ get a chance to win a $50 Amazon gift card or a $50 donation to a diabetes organization.

Here’s the survey link: http://ow.ly/xrPB30pcb8o

Thank you for spreading the word about this survey.

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EHR disappointment

Recently I read this article about electronic health records (EHR). In case you don’t have time to read it, the article discusses the problems and risks associated with EHRs. There have been other articles in the past that have said health care providers don’t like EHRs, that they aren’t saving time like they were supposed to, etc.

Personally, I have been through two different hospital EHR conversions and one transition to a new EHR. I have never complained or resisted the change (even though the process is always difficult). This last time, though, has been extremely frustrating. I have not found it “intuitive” or “user friendly.” It feels more like layers upon layers of options and finding the right one – to get to where I want to go – is challenging.

That is my professional experience. As a patient, recently, I’ve had providers ask me about medications I haven’t taken in years. I’ve received printouts from the EHR that say we talked about things we never talked about.

Reading this article not only frustrated me (because it reminded me of my own experience), it scared me. These problems with EHRs could happen to me or my family – wrong medications could be ordered, labs could disappear or never get sent out.

I don’t know what can be done about this, and I hope someone does. Our health is a very important resource and not something to be messed around with.

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Quality Improvement Project

Recently I wrote about diabetes as a daily experiment. Soon after I realized it’s also like a quality improvement project. In QI there are lots of words and abbreviations. In QI they use words like adopt, adapt, and abandon.

Every day, while managing diabetes, we make decisions about what new practices, procedures or devices to adopt. We also constantly adapt what we’re doing to make things work better or differently. Finally, we need to be able to figure out when to abandon something that’s not working and move on.

All of this works most effectively with a clear mind and no judgment. Use the data in front of us, make a decision, and move forward. Just like everything else in life.

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Happy (Diabetes) Mother’s Day

mother's day (2)Happy Mother’s Day to all the moms who are also taking care of someone with diabetes. That could mean managing their own diabetes every day, while being a mom, or it could mean taking care of their child(ren) with diabetes. Either way, it’s a delicate balancing act and a lot of hard work.

I’m grateful to the moms who teach their kids with diabetes how to become independent, not only in life, but in diabetes management. Thank you for dealing with an extra dose of fear and anxiety when you say good-bye for a sleepover, a sporting event, an unaccompanied trip, college, and life as an adult. Thanks for accepting your child for who they are, for teaching them how to make decisions, for supporting them at all times (regardless of their glucose numbers), for loving them with diabetes.

Being a “diabetes mom,” no matter what that looks like, adds an extra layer of worry and challenge. And even on Mother’s Day there’s no relaxing or taking a break. So consider this some extra mother’s day love. Now go get some hugs from those kids!!

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Less technology less likely

flip phoneDid you see the LinkedIn article titled, Is the Smartphone Era Ending? Just reading that headline made me think of diabetes technology and chuckle. I’d heard not too long ago that people are worried about the negative effects of screen time and are going back to flip phones.

Not sure if that’s true, but today I started imagining people going backward in diabetes technology and using blood glucose monitoring rather than CGM, then going back to finger sticks with strips and color charts, and finally back to urine monitoring.

And what about going back to the old insulin pumps and eventually back to multiple injections and then one injection a day?

I actually don’t care about going back to flip phones. My only concern with that is how hard it would be to text again (I remember pushing keys multiple times to get the right letter). But then again, maybe texting with our fingers will be over by then.

At any rate, we need top notch technology that we have access to and can count on in diabetes. Going backwards in diabetes management options is not only dumb, it’s dangerous. So instead let’s figure out how to get it in everyone’s hands.

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Diabetes & Gig Economy Workers

Today’s blog post is by guest blogger, Jess Craig
As a New Yorker who has her share of subway horror stories, (I’ve met NYC rats far less graceful than the legendary pizza rat), I’ve spent lots of time using ride sharing apps (Uber, Lyft, Juno…you name it, I’ve tried it). I’ve met some fascinating people along the way ranging from survivors of civil war to physicians & lawyers in their native home. One nearly universal finding (in my very unscientific survey) is that most if not all drivers I’ve met lack basic healthcare coverage. Many drivers claim that the cost of insurance, coupled with rising cost of living in NYC, preclude any ability to purchase affordable coverage. This is quite troubling as there’s evidence to suggest that sedentary workers have higher risks of developing type 2 diabetes, in tandem with a higher correlation of cardiac disease and orthopedic dysfunction (e.g. chronic low back pain).
These drivers are part of a growing “gig economy” which encompasses part-time/full-time independent contractors, who have the autonomy to chose their own work schedule in a pay-per-task model. Many tech startups rely heavily on these contract workers to scale their business and most would argue that providing healthcare coverage would not be feasible given the heavily regulated, costly nature of healthcare administration. Furthermore, finding consensus on who should be responsible for providing healthcare to citizens has proven to be as simple as wrangling cats. Emerging evidence is just beginning to explore the occupational health risks; therefore, I’d like to focus on how we can empower those who are on the front lines of the ride sharing, gig economy.
First up, know your numbers: Retail pharmacies like CVS & Walgreens market more reasonably priced glucose monitoring kits, with “more affordable” strips (my rant on the costs of diabetes supplies will be reserved for another day), digital blood pressure kits & and tape measures (to track your abdominal girth).
Find your nearest Federally Qualified Health Center: These community health centers can provide care if you have no insurance and/or ability to pay.
Get moving, whenever possible!
How we fix this broken healthcare system is a debate for another day, but hopefully these suggestions can help!
References:
Jess Craig PT, DPT is a physical therapist, clinical instructor and certified functional capacity evaluator, completing a Master’s in Diabetes Education & Management at Teachers College, Columbia University. Jess is based in NYC and is a lover of all things related to tech, cooking, beauty & Barbados.
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Social Stigma and Diabetes

There has been quite a bit of research on diabetes and stigma, and there is a lot of stigma attached to diabetes. People with diabetes are often thought of as lazy, poor, fat, weak, bad, not intelligent, and over eaters. At a conference last fall, we were discussing how people with both type 1 and type 2 diabetes have reported feeling stigmatized. The following question came from that discussion.

CRS Q/A Question: Why does T1DM have more social stigma than T2DM? It is out of their control.

One study showed higher rates of experiencing stigma in people with type 1 diabetes, which may be related to type 1 diabetes being more visible than type 2 diabetes. People with type 1 diabetes often check blood glucose levels and inject insulin in public. They are also more likely to wear continuous glucose monitoring devices on areas of the body that show and insulin pumps on their belts.

People with type 1 diabetes may also be more likely to discuss their experiences with stigma. People with type 2 diabetes have had such a hard time with judgment and being told (or having it implied) that it’s their fault for having diabetes that they may not be willing to share about stigma as much.

What we have to remember from this topic and this person’s question/comment is that no one deserves diabetes. Saying that type 1 diabetes is out of someone’s control implies that someone with type 2 diabetes does have control over it. Genetics is one of the biggest factors contributing to type 2 diabetes, and no one has any control over their genes.

It’s time to stop blaming and shaming in diabetes. It doesn’t help anyone or anything and it’s quite possibly doing a lot of harm. I do not write this to shame the person who asked. I am glad they asked. I’m even glad they made the comment, because we have to shed light on this problem of treating people with diabetes like they did something wrong and are being punished for it.

Thank you for the question, and thank you to everyone for considering changing our approach.

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